October 9th is ✴︎PANS ✳︎PANDAS Awareness Day. These neurological disorders affects between 1 in 200 children. It is NOT a rare disorder, it is rarely diagnosed. It affects the basal ganglia region of the brain, otherwise known as the midbrain. This region is primarily used for motor learning, executive function, behaviors and emotions. Both disorders are misdirected immune responses.
My daughter has both PANS and PANDAS. It took years for us to figure it out, because so many providers would say she's just going to be that odd Aunt everyone talks about, or she just barely misses the the classification for autism. In the end momma, me figured it out. We found a practitioner to help her only through persistence and perseverance. It should not be that hard for families to find help for their loved ones. Additionally treatment should be covered by insurance. Majority of her treatment has been paid out of pocket because insurance does not cover functional medicine which gets to the root cause of illness.
Signs and Symptoms
It is not a requirement to have all these symptoms to be diagnosed with PANS or PANDAS. Generally 3 the above symptoms happening concurrently qualifies for a diagnosis. Contact your child’s pediatrician or visit PANDAS Physician Network for a listing of PANS PANDAS literate doctors.
Treatment for this neuro-inflammation varies from long term antibiotics (bad for the gut IMHO), IVIG, antipsychotics,, functional medicine (diet and nutraceutical support), homeopathics, and more. There needs to be more research done in this area of medicine.
Here are 2 opportunities for you to help.
✳︎PANDAS (pediatric autoimmune neuropsychiatric disorders associated with streptococcal infections)
Mary, is the creator and founder of PaleoLove Company, Mom, wife, friend, partner in crime, and entrepreneur. She has been a lover of art, food and traveling since she was very young. She began her paleo journey just out of curiosity, then her oldest daughter developed health problems where she needed to consume a low carb low sugar diet. It is here where she developed her skills in creating and making low sugar low carb treats and eats.